The Alex Manfull Fund at HOCR 2023

The Alex Manfull Fund at HOCR 2023

Event date October 22, 2023
Event time 8:00 am ET
Event location
Cambridge, MA
  • Education
  • Health Initiatives
Total raised:
$14,569
Donation goal:
$10,000
146% of our $10,000 goal!

This event has already passed.

About This Campaign

Please join us in supporting The Alex Manfull Fund (TAMF) as we row in honor of Alex. “This is a sport that Alex absolutely loved,” says Susan Manfull, PhD, Alex’s mother who, with her husband, founded TAMF about five years ago when their daughter died at 26 years old due to complications from PANDAS, a little known autoimmune condition triggered by strep. “Coxing and competing in races like the Head of the Charles was who Alex was. Until she was afflicted with this horrific disorder, Alex was a vibrant young woman.”

The Alex Manfull Fund team consists of male rowers who were coxed by Alex and female rowers who were part of the close-knit rowing community that once included Alex. The team will compete in the Director’s Challenge Mixed Eight Race, scheduled for Sunday, October 22 at 3:56 PM.

Funds raised from this event will go toward TAMF’s work to raise awareness about infection-related neuroimmune disorders like PANDAS and PANS, advance education for physicians and mental health providers, and research. A portion of the funds raised for this event will support research conducted by Dr. Kyle Williams and his team at the Pediatric Neuropsychiatry and Immunology Program in the OCD and Related Disorders Program at Massachusetts General Hospital.

This is a great opportunity to reach the public and underscore that these autoimmune disorders, triggered by common infections like strep, Lyme, and even COVID, can happen to anyone – even happy, healthy, even-keeled individuals with no history of neuropsychiatric disorders,” said Susan Manfull. “Alex would be alive today if one of the many doctors she saw early on had recognized PANDAS.”

About Alex Manfull, the Coxswain
Alex spent eight years of her abbreviated life coxing young men at Phillips Exeter Academy (PEA) and Princeton University. Alex was so well respected by her team at PEA that they voted her co-captain of the 2009 men’s team, a position not earned by a young woman before or since. By the end of her high school years, she was nationally recognized for her skills as a coxswain and went on to cox for the lightweight men’s team at Princeton.

“In the roughly 50 years that I have been coaching and teaching, I have never worked with a better coxswain than Alex Manfull. Far more importantly, however, I never worked with a more graceful, humble, supportive, talented, or upstanding young person. Alex made all of us around her better,” said Lawrence Smith, PEA Boys’ Varsity Crew Coach (1989-2011).

Event Information

On October 20-22, 11,000 athletes from around the globe will gather in Boston to compete in this premier head race, the world’s largest three-day rowing event. Among the estimated 2,000 boats set to race on the 3.2 mile course will be a mixed-eight shell filled with four men, four women, and a coxswain that comprise a team rowing to honor the late Alexandra “Alex” Manfull.

TAMF will have a hospitality tent located in Reunion Village on the Cambridge side of the Charles river on Saturday, October 21 and Sunday, October 22, 2023. Please come to meet the team, talk with people whose lives have been impacted by PANDAS/PANS and other neuroimmune disorders, and chat with experts about these disorders. For details, visit… TheAlexManfullFund.org/HOCR.

More About The Cause(s)

The Alex Manfull Fund supports awareness, education, and research to further understand the incidence, etiology, and best treatments of post-infectious neuroimmune disorders (aka PANDAS, PANS, and Autoimmune Encephalitis) with an emphasis on their manifestation in Adolescents and Young Adults. Our ultimate goal is that no life ever again be cut short – or interrupted – by any neuroimmune disorder. TAMF is a national 501(c)(3) non-profit organization; all donations are tax-deductible to the full extent permitted by law.

Supporters

  • Soleo Health
  • Lawrence Kristopher
  • Vigilant Wealth Management
  • Emily Newman
  • Jessica FORBES
  • Lynda Lecrone
  • Rob and Kathy Anderson
  • Theresa Strohmeyer
  • Andrew Clancy
  • Erika Frey
  • Dan Mahr
  • Adrianne Wyatt
  • Cory Blitz
  • Kevin Leitao
  • Lauren Ayers
  • Nick Bax
  • Julia Seigel
  • Hannah Rabin
    Go Will! Proud of you!!
  • William Ellis
  • DAVID RABIN
    Awesome that you are doing this in her memory. Good luck!
  • Paul Dimitruk
  • Lauren Janes
  • Susan Manfull
  • Kevin and Kristen Kelly
  • Vernis Jackson
  • Ted & Caroline Safir
  • Steve Erban
  • Ben Erban
  • Barbara and Lew Weinstein
  • Andrew Safir
  • Yoni Doron-Peters
  • Phong Nguyen
  • Debbie Lagomarsino Woidke
  • Mark Rogers
  • carol weinstein
  • Josh Sans
  • Will Scheffer
  • Kasey Colander
  • Susan Totten
  • Taylor Nelson
  • Jack Leonard
  • Martha Morrissey
  • Andrew Weinstein
  • ANDREA GRAZIO
  • William Manfull
  • Sharon Leuzzi
  • Yvonne Cangelosi
  • Candace Wheeler
  • David Scott Allen
    Mark and I wish we could be there to cheer on Alex’s scull!
  • Christopher Darlington
  • Lisa S. Harper
  • Monica Connolly
    We are thrilled to support such an important cause. Best wishes to HOCR Team for a great race!
  • Allan Amico
    Proud to be able to honor Alex and raise awareness doing the sport we both love
  • Vaidhy Murti
    Thank you so much!!